Children and Young People: Palliative Care

Royal College of Nursing (2018) RCN competencies: caring for infants, children and young people requiring palliative care. 2nd edn. London: RCN.

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Blackburn M et al. (2019) Talking about sex, sexuality and relationships: guidance and standards. For those working with young people with life-limiting or life-threatening conditions. Bristol: Together for Short Lives.

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Brook L (ed.) (2024) Association of Paediatric Palliative Medicine master formulary. 6th edn. 

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Chambers L and Kelly K (2023) Stepping up: A guide to developing a good transition to adulthood for young people with life-limiting and life-threatening conditions. Bristol: Together for Short Lives.

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Jassal S S (ed.) (2022) Basic symptom control in paediatric palliative care. 10th edn. Bristol: Together for Short Lives.

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Together for Short Lives (2019) Caring for a child at end of life. A guide for professionals on the care of children and young people. Bristol: Together for Short Lives.

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Together for Short Lives (2018) Hidden lives: tackling the social exclusion of families caring for a seriously ill child. Bristol: Together for Short Lives.

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Together for Short Lives (2018) A guide to children’s palliative care: supporting babies, children and young people with life-limiting and life-threatening conditions and their families. 4th edn. Bristol: Together for Short Lives.

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We would like to thank the RCN CYP Palliative Care community and  Sue Langley - Library & Information Services Manager, East Anglia’s Children’s Hospices, for their input into the development of this subject guide.

Bellieni C V (2022) A new holistic-evolutive approach to pediatric palliative care. Cham: Springer Nature.

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Bruera E, Higginson I J, Gunten C F von and Morita T (2021) Textbook of palliative medicine and supportive care. 3rd edn. Milton: CRC Press.

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Cooper D B and Cooper J (eds.) (2019) Palliative care within mental health: ethical practice. Milton: Routledge.

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Davies B, Steele R and Baird J (2022) Pediatric palliative care: a model for exemplary practice. Oxford: Routledge.

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Downing J (ed.) (2020) Children's palliative care: an international case-based manual. Cham: Springer. 

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Hain R, Goldman A, Rapoport A and Meiring M (2021) Oxford textbook of palliative care for children. 3rd edn. Oxford: Oxford University Press. 

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Limbo R K, Wool C and Carter B S (2020) Handbook of perinatal and neonatal palliative care: a guide for nurses, physicians, and other health professionals. New York: Springer.    

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Mancini A, Price J and Kerr-Elliott T (eds.) (2020) Neonatal palliative care for nurses. Cham: Springer.

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Nash P, Hussain Z, and Parkes M (2015) Multifaith care for sick and dying children and their families: a multi-disciplinary guide. London: Jessica Kingsley.

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Nash S, Nash P, and Darby K (2015) Spiritual care with sick children and young people: a handbook for chaplains, paediatric health professionals, arts therapists and youth workers. London: Jessica Kingsley.

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Preedy V R (2019) (ed.) Handbook of nutrition and diet in palliative care. 2nd edn. Milton: CRC Press.

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Rodriguez A M (2023) Death, dying and palliative care in children and young people: perspectives from health psychology. Milton: Routledge.

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Watson M, Ward S, Vallath N, Wells J and Campbell R (eds.) (2019) Oxford handbook of palliative care. 3rd edn.  Oxford: Oxford University Press. 

Chapter 16 covers paediatric palliative care.  

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Watson M (2016) Palliative adult network guidelines and paediatric palliative care guidelines. 4th edn. Academic Health Science Network.

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Use these links to see details of books the RCN libraries hold on the topic

• Palliative care: children and young people

Use these links to see details of journal articles on each topic.

• Palliative care: children and young people

Journals of interest for children and young people palliative care. Use these links to see details of availability.

• BMC Palliative Care
• International Journal of Palliative Nursing
• Nursing Children and Young People
• Palliative and Supportive Care